The Story of Charlotte’s Web
Charlotte Figi had her first seizure when she was just 3 months old, from there thing’s only got worse. Over the following months Charlie’s seizures continued, sometimes lasting up to 4 hours long.
“At 2, she really started to decline cognitively,” Paige, her mother said.
By the time she was 3 years old she had lost the ability to walk, talk and eat. It was concluded to be Dravet Syndrome, a severe form of epilepsy.
Charlotte’s heart actually stopped a number of times due to the severity of the seizures, at which point a medically induced coma was suggested by the Doctors to give her little body a rest.
Fortunately, Charlie’s father Matt made an amazing discovery online – a familiar story, a young boy with epilepsy and extreme seizures just like his Charlotte, the only difference being that this young boy was being treated with medical marijuana of all things…
The Figi family figured, they had tried everything else for Charlotte, all the doctors and their medical advice – but just maybe this could work. Maybe the ‘experts’ had missed or decided to forego telling them something, after all marijuana still has somewhat of a taboo surrounding it.
So the family got in touch with the Stanley Brothers, the owners of a large medicinal marijuana dispensary based in Colorado. The brothers were working on a crossbreed of marijuana with low THC content, but a high CBD content. Essentially cannabis that has medicinal properties but with no ‘high’ or psychoactive effects.
“The biggest misconception about treating a child like little Charlotte is most people think that we’re getting her high, most people think she’s getting stoned,” Josh Stanley said, stressing his plant’s low THC levels.
“Charlotte is the most precious little girl in the world to me. I will do anything for her.”
The brothers formulated a special strain of marijuana with a high CBD content and named it ‘Charlotte’s Web‘.
The first time Paige Figi gave Charlie the cannabis oil, she couldn’t quite believe it…The seizures stopped for seven days straight.
“I literally see Charlotte’s brain making connections that haven’t been made in years,” Matt said.
“My thought now is, why were we the ones that had to go out and find this cure? This natural cure? How come a doctor didn’t know about this? How come they didn’t make me aware of this?”
The brothers went on to start the Realm of Caring Foundation, a wonderful non-profit organization that provides medicinal marijuana to adults and children suffering from a host of diseases. They provide 41 other patients with Charlotte’s web to ease painful symptoms of diseases such as epilepsy and cancer.
Charlotte gets a dose of the cannabis oil twice a day in her food.
These days her seizures only happen maybe two to three times a month and almost solely in her sleep. Now can she walk, ride her bicycle, and feed herself. She’s full of laughter and talking more and more each day – all things Paige would never have imagined possible without medical marijuana.
Matt now claims he wants “to scream it from the rooftops. I want other people, other parents, to know that this is a viable option.”